Trying to make a comeback....

stinky634

stinky634

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Hey guys, I have been lurking a lot lately but keeping quiet. First I got pretty busy, then got slammed with some health issues.

I was having intermittent abdominal pain for the last year or so, and the last few months have been in and out of the Dr's office. I got tested for a lot of things including throat, stomach, gallbladder, etc; issues but eventually the testing ran out of time with no luck and I landed in the Emergency room with high fever and severe pain.

I ended up getting admitted and after more testes (the colon kind, ewww) they find out that I have Colitis (inflammation of the large intestine/colon) which is caused in my case by Crohn's disease, with a biopsy result of a possibility of ulcerative colitis. I'll let you google it if you want to know all the details of them, but basically its a life long thing, no cure, and my diet is changed and I am on pills everyday.

I am home now and pretty much back to normal aside from the change in diet which changes a lot about your body and its functions. No pain yet, and I am still adjusting to what I can and cant eat. I feel brave enough to eat things I shouldn't but when I do, it knocks me down a notch. The pills are expensive without proper drug coverage ($200 a month) and I am constantly reading and trying to figure out what it all means and what other treatment options I have. Other than that I am basically back and ready to move on.

Anyway, just wanted to share with you guys and let you know I am hoping to get back in the 'Can you do it?' madness. If your the praying type please say a quick one for me as our family has a lot going on the next few months, new baby, graduation for my wife from Nursing school, and hopefully not running out of money until she can get a job.

Adam.
 
damn.

sorry to hear about the health issues.

not having health insurance is a pain in the arse.
I didn't have insurance for the past decade, and paying out of pocket is horribly expensive, even for minor things.

I'm confident your wife will find a job. Nurses are in demand here in CA.
Hang in there. I believe keeping a positive attitude is important.
 
Hola, Adam,

I´m not the praying kind, but i´m sending all the good and positive energies I could to you and your family. Hope things get better soon for you.
 
Adam, thoughts with you and your family; keep it +ve, sounds like ur focusing there anyway.
 
Good luck to you. Diet is EVERYTHING, whether you are healthy or going through some problems like you are. I'd stay away from those things you know you shouldn't eat, especially if it knocks you down a notch as you say. It's probably empty calories and simple carbs anyway, so just stay away :)

Keep up on your bass practice :)
 
Thanks for the replies guys.

To clarify a bit, I do have health insurance, Medicare since I am on SSDI anyway, but I opted not to get drug coverage, so its full price meds until open enrollment starts again, or I can try to get a supplemental plan like my Grandma is trying to convince to me to get.

The diet isn't your normal 'healthy' diet, I'm not supposed to have high amounts of Fiber, or raw vegetables. Seeds, nuts, etc are gone, as well as milk (lactose free seems to be fine for me though) Its a tough area because there isn't a set diet restriction, its based on what I can tolerate, so I started slow sticking to simple soft foods like apple sause and bananas, and slowly would add things once in a while to see what happens. I think I got brave this past week and ate way too much and too much variety, and my body seems to not like it so much. It's extra hard when they give you meds (steroids, to help with the healing, temporary med) that makes me hungry all the time.
 
Damn, I don't know squat about your condition but I'm hoping for the best for you and sending positive energy your way. I've seen too much not to believe in the power of prayer and if it comes down to it, I'll take a knee on your behalf. Please do all you can to take care of yourself and maybe see an herbologist and dietician.
 
Adam...your family's on our prayer list...Romans 8 : 28-trust that this situation will work out for the best! :-)
 
Just read this thread today ... I'm not da praying type man, but my thoughtz are with U and ur family ! Hope U get well soon ... !
 
Unfortunately doctors and pharmaceutical companies today does not want you to heal, but to remain in a chronical state, and this is a fact. I know many cases of people who just stopped the medication for an incurable disease, and, with some help from inside, from above, or from other type of medicine, have been cured.
Including myself and my wife. I had really bad asthma, stopped like 15 years ago, never had a problem since then, and now I started to smoke. I had severe back issues, like spina bifida, and 3 other disease in the same spot on my lower back. I was a cripple, my sister was helping me to tie my shoes... Believe me or not, there was a guy claiming that he can heal everybody with his prayers. I was like... "yeah right..." but I went to that session. I saw with my own eyes a guy in a wheelchair starting to walk after I don't know how many years, and well, that day was the last day my back hurt... Also about 15 years, of jumping on the stage with a 5 kilos bass, and moving heavy stuff around, and doing sports. Remember, I could't even walk,mand doctors told me I will be like that for the rest of my life.
2 years ago my wife was diagnosed with some bad form of rheumatism, and they gave her some really nasty medication. They told her she will end being a cripple, and she will not be Ok again, but they can slow down the process with those chemicals. Well, she stopped taking them after the pain stopped, and never had a problem since then.
I believe that the medicine today still don't have a clue about how things work, but I also thing they are not always well intended, and they love chronic ill people.
My 2 cents.
 
Florin, that's a pretty awesome story. Asthma is no joke, my brother in law had it growing up, and it went away on its own as well.

I have been making myself read everything I can about Crohn's and treatment options, natural diets, things like that. Its just one of those things where everyone reacts differently to different treatments. I feel the same away about medicine, that its not to heal but to treat the symptoms basically, but here I am on some stupid pills. Crohn's has no cure, and what I find very disturbing is that its primarily found in modernized countries, like in America and Europe and not so much n 3rd world countries. It makes you wonder what we are eating/breathing thats causing large amounts of people to get this level of sick. It really really makes you sit back and start thinking up conspiracy theories.

All I know right now, is that my diet sucks and I am either reacting bad to certain food, or the meds just aren't working. From leaving the hospital I was feeling better and better, then it plateaued and now I get random attacks here and there, digestive issues, and other embarrassing episodes I wont go into detail about. I have a follow up appointment with my GI doctor in another week and a half so hopefully I will be able to figure out the 'plan' and see what options I have.

Thanks for letting me share guys. I hope you all are doing well.
 
I 've heard Crohn's is certainly not fun. Stay strong Adam, so you can explore your options and be as well as possible.
 
Best of luck to you Adam. Believe me, I know what you're going through isn't fun. My Dad had colitis. Three years I got acute pancreatitis caused by a gall stone that passed and it kicked my ass. Hang in there!
 
I guess I should update this thread instead of thread jacking the Can You do It? thread.

So since I updated last, I was having some abdominal cramping, urgency, and generally felt sick, and went through antibiotics, more steroids, and higher doses of mesalamine. That was a rough month, the side effects of the steroids alone could make one miserable, moon face, acne, weak feeling, sun sensitivity, hunger, fatigue, insomnia. The antobiotics made my mouth taste like metal and caused some nausea. Finally was able to get some tests done and saw that all my inflammation was cleared out and according to them I was better, not cured, but in 'remission' or not having active inflammation in my body. Great news! Off the meds and on my way.

I got one good month, maybe 2 where I was feeling better and generally ok. I had headaches quite often and still the random mild to mildly severe cramping, but the kick in the butt came about a month ago. I started feeling stiff in my shoulders, figured I was just needing exercise and stretching, but even with the little exercise I did, nothing helped. I started feeling stiffness in my knees, fingers, and my feet. This quickly started turning into severe severe joint pain, enough to keep me in bed for hours and not able to sleep at night unless I doped myself up on Vicodin.

Crohn's disease has a 25 percent chance of developing joint problems, figures I'd be so lucky to part of it. The more I read I actually suspected the joint pain, as well as the head aches and cramping, was caused by the med Mesalamine I was on so I culdnt take it anymore and just stopped taking it altogether. Initially, I started feeling better, the joint pain disappeared, but my headaches didnt. I did however develop extreme pains and digestive troubles to put it cleanly. My intestines needed the meds but its a toss up, joint pain or abdominal pain and all that. The decision became easier as my joint pain returned while off the meds earlier this week. I am slowly starting to develop my joint pain again, so I got fed up and started my meds again to at least relieve my stomach and digestive tract.

I have an appointment Friday with my main Dr to see what to do about the joint pain, what I have been able to read about it, does not look promising. Crphn's meds that can treat joint pain carry huge side effects (Humira, Sulfazine) Please be in prayer that this can be handled efficiently and effectively.

All this at age 28, not being able to play with my kids, and being laid up all the time, it gets me down. I am in constant prayer and believe God won't give me anything I can't handle. I have been able to play my bass pretty often and am so thankful that at least some things in life have not yet been stripped from me. My super hot nurse wife takes good care of me and I am blessed to have such an understanding 4 year old who helps me out every day.

Thanks for all the kind words and prayers. I promise to stick around even after my body gives out.
 
Thanks Adam for letting us know, we do care...
I googled Crohn's disease, and I saw two interesting things. It is an autoimune disease which is not good, but I guess by it's nature it is something related to your mind, at least this is how my feeling is telling me. I guess a right positive strong attitude can help more than the nasty Sulfazine ( I know it, my wife took it...) Now your body fights against healthy cells. I guess the means to stop it are not necessarily chemical.

another interesting thing, si that the first thing that appeared when I googled Crohn's was - Medical Marijuana and Crohn's disease-

Maybe you do a research about it. I would trust more a plant with insignificant side effects, rather than the ♣♣♣♣ty chemicals you are taking now... That plant is made by God, and it probaly can cure you. salazine is made by business people, and it is meant to be taken your whole life, in order to bring them profit.
They do business no matter what the field is, and their only concern, is profit. a cured man is not profitable to them.


Good luck brother, and please let us know how it goes.
Flo
 
Good luck man!, I've been tested for Crohns multiple times in my life. At least they know what is up with you to a degree. Hope you get better soon!
 
Florin said:
...Unfortunately doctors and pharmaceutical companies today does not want you to heal, but to remain in a chronical state, and this is a fact...
Click to expand...
WOW. That is a pretty harsh statement without backing it up. What and where are these so called "facts"?

I am glad that you and your wife are feeling healthier again, but you can't say things like this without any sources backing you up without sounding like a paranoid conspiracy nut. And before you say anything - I am well aware of the placebo effect and know it is a medical factor that shouldn't be disregarded, I have studied it myself.

Also, it is a HUGE insult to all the dedicated researchers working towards curing diseases like cancer and AIDS all over the world, a lot of them working for the pharmaceutical companies.

Adam: all the best of luck to you, I hope you can learn to live your life as well as you can. I am suffering from a chronic, albeit not fatal medical condition that has now ruined my everyday life for 5 years. I know how it can affect you. I have no other advice than take time to enjoy your life, treat yourself and your family to something special as often as you can afford and have time.
 
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A couple of thos well dedicated researchers are friends with me, so I know some very interesting stories... They have their hans tied. If they find a cure for something, that company will simply compare the profit of the existing drugs they are selling, vs the new drug, and they will leave the most profitable one. The researchers do their jobs, but I am afraid their bosses have a different thinking.
I want to stop here, as I don't want to turn it into a conspiracy thread... All I say is you cannot 100% trust a thing where a huge amount of money are involved.
 
Florin said:
A couple of thos well dedicated researchers are friends with me, so I know some very interesting stories... They have their hans tied. If they find a cure for something, that company will simply compare the profit of the existing drugs they are selling, vs the new drug, and they will leave the most profitable one. The researchers do their jobs, but I am afraid their bosses have a different thinking.
I want to stop here, as I don't want to turn it into a conspiracy thread... All I say is you cannot 100% trust a thing where a huge amount of money are involved.
Click to expand...
Yeah I agree about the thread - but feel free to PM me with some proof.
 
Hey Adam! I just read the thread, and we're thinking of you over here! Take care!

I'll drop a prayer for you in Church when I'm playing on the weekend.

:d
 
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